Thousands raised for Prader-Willi research
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PARIS, N.Y. -- Two Oneida County parents whose son is affected by a debilitating genetic disorder, worked to raise more than $12,000 towards research this weekend.
They accomplished the feat through a series of walks called One Small Step for Prader-Willi Syndrome. Their thirteen-month-old son, Layne Parks, was diagnosed with the disorder when he was only ten days old.
Prader-Willi patients have one fewer chromosome, which causes low muscle mass and chronic hunger.
According to Layne's parents, their biggest goal is to make sure people know about the syndrome.
"It is something that we had never heard of. It's funny how something like that can control the rest of your life. So like I said, we're here to try to raise some awareness and get some people together and raise some money for research," said Tadd Parks, Layne's father.
The Parks family said some treatments have helped Layne build muscle, but scientists have yet to figure out a solution for the hunger.